Family night Christmas cookie making fun!! 🎄✨🎁🎆I've never made homemade icing before...😳I know, I know!! Hubby for the win. He taught us all and the girls looooved it. I love starting new fam traditions!! Do you have a cookie making tradition? 😃
Loving this to no end. Been 🥊🥊🥊🥊🥊🥊🥊🥊 for so long to help buffer my daughter from feeling the pangs. Doesn’t always work, but we’re STILL HERE!! Falling but getting back up. GOD knows ALL. HE is a WAY MAKER! Picture is a repost from @farrahgray_#singlemothers#OIMom
On Monday I had my third operation on my leg where they removed the old rod, re-broke my fibula and put on an Ilizarov frame. Hopefully this will align my bones and they will finally heal!
I'm doing really well, been up and about on my crutches around the ward, the physio's and doctors are very impressed! And best of all, after only staying for two night, I now get to go home!!! Waheyy 😄😄
It’s Monday. And because it’s Monday it has to be motivational. So here’s my wisdom for this Monday - enjoy the day for you. Make it your day and don’t let anyone else shit on your Monday that is hopefully filled with lots of unicorns and rainbows.
"This is my Miracle Sophia Grace! We found out when I was 26 weeks pregnant that Sophia was going to be born with osteogenesis Imperfecta. From that day on we had countless specialists appointments, countless ultrasounds, and many unanswered questions. We were told to prepare for the worst. They told us Sophia wouldn’t be able to breathe or eat on her own, she would never walk and she would break countless bones every year. We had faith in God and all the professionals around us. We knew our little girl would be just fine. Skip ahead to 37 weeks my water broke and we headed to the hospital. I was scared for my daughter. I️ was afraid all those doctors would be right. Then at 11:49pm on April 5, 2016 Sophia Grace came out screaming!! The most beautiful sound I️ ever heard! From that moment on I knew all the doctors were wrong about everything they told me she would never do! She was breathing on her own, she was eating on her own! She was perfect. We left that hospital 3 days later with a very fragile child! She broke many times in the first few months of her life! We decided to move to Delaware so she could be seen by some of the best specialists who deal with her condition. Fast forward to now and Sophia is thriving!! She is currently 19 months old and like any other kid, granted she does break easy. When Sophia doesn’t have a fracture she is walking independently and climbing steps! She is a warrior. We have been through many surgeries, many hospital stays and many broken bones but Sophia is by far the most beautiful girl you will ever meet. She has a personality that will make anyone laugh and everywhere we go people smile and comment on how beautiful she is! She is the smartest girl I️ know and the bravest. She handles her medication like a champ. I️ want you all to know that no matter what the doctors tell you just have faith! If we would have listened to those doctors in Colorado we wouldn’t be where we are today! Have faith in your family and in God that everything will be okay and everything will be! We have been given the best gift in life and I’d go through all this again just to have my sweet Sophia!" ❤️✨ @fragilesophia#enableawareness
Hitting the road for Wichita with this little lady and Cate! Her follow up with our wonderful bone doc is tomorrow! We have learned by now to never go into these appointments with any kind of expectation… So just praying for the best and invite you to join us in that!❤️🙏🏻☺️
#OIWarrior is back in stock 🎉Do you know of a non-profit for #osteogenesisimperfecta? I have several tees that I would like to donate. If you know of an organization or someone who works for one, will you please tag them here?