#brittlebones - explore the 5,483 amazing instagram photo collage and videos



Have you ever seen someone so happy to be on the Trilogy Ventilator in your whole life?? I can finally feel my lungs expand and fill with delicious air. I think I have the correct settings and found the proper fitting mask finally too. #trilogyventilator #oxygen #osteogenesisimperfecta #oican #brittlebones

Have you ever seen someone so happy to be on the Trilogy Ventilator in your whole life?? I can finally feel my lungs expand and fill with delicious air. I think I have the correct settings and found the proper fitting mask finally too. #trilogyventilator #oxygen #osteogenesisimperfecta #oican #brittlebones

Happy birthday to my favorite April fool!! 😘🎉🍾🍕🥂🍷👵🏼👴🏻 love you! wishing you your best year yet!! #jimmyboy #brittlebones 📸@momentsbymcmahon

Happy birthday to my favorite April fool!! 😘🎉🍾🍕🥂🍷👵🏼👴🏻 love you! wishing you your best year yet!! #jimmyboy #brittlebones 📸@momentsbymcmahon

Happy #WishboneDay 💪🏻💛! AKA the first day of National OI Awareness Week! Wear yellow to help raise awareness about Brittle Bone Disease! #OI #unbreakablespirit #brittlebones

Happy #WishboneDay 💪🏻💛! AKA the first day of National OI Awareness Week! Wear yellow to help raise awareness about Brittle Bone Disease! #OI #unbreakablespirit #brittlebones

Your favourite stay at home grandmother #frail #brittlebones #calciumsoftchew

Your favourite stay at home grandmother #frail #brittlebones #calciumsoftchew

Three unforgettable concerts with Janine Jansen and Torleif Thedéen including a charity one to support cure for Brittle Bone disease #alexandergavrylyuk #janinejansen #trio #brittlebones #chambermusic

Three unforgettable concerts with Janine Jansen and Torleif Thedéen including a charity one to support cure for Brittle Bone disease #alexandergavrylyuk #janinejansen #trio #brittlebones #chambermusic

Posting a shirtless selfie because it will get more likes than my previous post about my band @brittlebonesmusic new single getting played on @shortfastloud tonight from 10pm #comeclean #brittlebones

Posting a shirtless selfie because it will get more likes than my previous post about my band @brittlebonesmusic new single getting played on @shortfastloud tonight from 10pm #comeclean #brittlebones

Breathing can be beautiful too. When I first started to wear oxygen full time (4 years ago) I was very self conscious about it. I didn’t feel pretty and I thought I looked ridiculous even attempting to wear makeup with an oxygen cannula strapped to my face. Now it’s normal for me. I just see me, being alive. #osteogenesisimperfecta #oican #brittlebones #restrictivelungdisease #chronicpain #oxygen #cannula #makeupjunkie #idoitformyself #bepositive

Breathing can be beautiful too. When I first started to wear oxygen full time (4 years ago) I was very self conscious about it. I didn’t feel pretty and I thought I looked ridiculous even attempting to wear makeup with an oxygen cannula strapped to my face. Now it’s normal for me. I just see me, being alive. #osteogenesisimperfecta #oican #brittlebones #restrictivelungdisease #chronicpain #oxygen #cannula #makeupjunkie #idoitformyself #bepositive

Cupcake went with us to Louisville for Paige's infusion. I think she looked pretty darn comfy! We're having so much fun with this elf thing! #elfontheshelf, #cupcaketheelf, #louisvilleorbust, #louisville, #paminfusion, #PAM, #bonejuice, #ivsarenofun, #osteogenesisimperfecta, #type5OI, #brittlebones

Cupcake went with us to Louisville for Paige's infusion. I think she looked pretty darn comfy! We're having so much fun with this elf thing! #elfontheshelf, #cupcaketheelf, #louisvilleorbust, #louisville, #paminfusion, #PAM, #bonejuice, #ivsarenofun, #osteogenesisimperfecta, #type5OI, #brittlebones

Here’s what James [@officialjtylee] had to say about #DisableYourDisability. He’s back at it and getting stronger every day! Get your copy or give one for the holidays! http://bit.ly/BuyDYDNow #osteogenesisimperfecta #brittlebones #fuoi #oiaintgotnothingonme #strongereveryday #unleashthepowerwithin #motivation #inspiration #book #goodreads #bookofthemonth

Here’s what James [@officialjtylee] had to say about #DisableYourDisability. He’s back at it and getting stronger every day! Get your copy or give one for the holidays! http://bit.ly/BuyDYDNow #osteogenesisimperfecta #brittlebones #fuoi #oiaintgotnothingonme #strongereveryday #unleashthepowerwithin #motivation #inspiration #book #goodreads #bookofthemonth

I know two little brave monkeys who are ready for a trip to toys r us! #infusions #osteogenesisimperfecta #brittlebonedisease #brittlebones #zoledronate #zometa

I know two little brave monkeys who are ready for a trip to toys r us! #infusions #osteogenesisimperfecta #brittlebonedisease #brittlebones #zoledronate #zometa

Didn't do another makeup look today as I was at hospital most of the day so enjoy this picture I'm captioning me and my chair number 2 😚🎁♿
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 #disabled #wheelchair #bluehair #tartan #Oi #christmas #osteogenesisimperfecta #brittlebones #nerdygirl #gamergirl #makeupobsessed #instadaily #instalife #instagrammer #blue #greenhair #geek #nerd #piercings

Didn't do another makeup look today as I was at hospital most of the day so enjoy this picture I'm captioning me and my chair number 2 😚🎁♿ 🦄 🦄 🦄 🦄 🦄 🦄 🦄 🦄 🦄 🦄 #disabled #wheelchair #bluehair #tartan #Oi #christmas #osteogenesisimperfecta #brittlebones #nerdygirl #gamergirl #makeupobsessed #instadaily #instalife #instagrammer #blue #greenhair #geek #nerd #piercings

Family night Christmas cookie making fun!! 🎄✨🎁🎆I've never made homemade icing before...😳I know, I know!! Hubby for the win. He taught us all and the girls looooved it. I love starting new fam traditions!! Do you have a cookie making tradition? 😃

Family night Christmas cookie making fun!! 🎄✨🎁🎆I've never made homemade icing before...😳I know, I know!! Hubby for the win. He taught us all and the girls looooved it. I love starting new fam traditions!! Do you have a cookie making tradition? 😃

This is an account of a time at a party where I really wondered. I watched in awe. I felt quite inadequate. Because noone can feel someone else's pain. How do I know I'm in pain? How do I know I'm not just lazy? What if everyone else feels like this and just gets on with it? I literally hurt, I break, when I hit the ground. I am being literal. But it works as a metaphor. It's so hard to tell where the fact stops - literary device begins. Because when I say I am fragile, I fall apart, it's hard to hold myself together, well the fact applies to the body but it's hard not to apply it to my whole self. When people tell me I am strong I get frightened they have misunderstood. But in a way it's me who's misunderstood. They don't mean my body. I am more than my body. #osteogenesisimperfectatype1 #osteogenesisimperfectaawareness #osteogenesisimperfecta #brittlebones #hypermobility #pain #chronicillness #disability #strong #poem #poetsofinstagram #expression #medicalzebra

This is an account of a time at a party where I really wondered. I watched in awe. I felt quite inadequate. Because noone can feel someone else's pain. How do I know I'm in pain? How do I know I'm not just lazy? What if everyone else feels like this and just gets on with it? I literally hurt, I break, when I hit the ground. I am being literal. But it works as a metaphor. It's so hard to tell where the fact stops - literary device begins. Because when I say I am fragile, I fall apart, it's hard to hold myself together, well the fact applies to the body but it's hard not to apply it to my whole self. When people tell me I am strong I get frightened they have misunderstood. But in a way it's me who's misunderstood. They don't mean my body. I am more than my body. #osteogenesisimperfectatype1 #osteogenesisimperfectaawareness #osteogenesisimperfecta #brittlebones #hypermobility #pain #chronicillness #disability #strong #poem #poetsofinstagram #expression #medicalzebra

Loving this to no end.  Been 🥊🥊🥊🥊🥊🥊🥊🥊 for so long to help buffer my daughter  from feeling the pangs.  Doesn’t always work, but we’re STILL HERE!! Falling but getting back up.  GOD knows ALL.  HE is a WAY MAKER! Picture is a repost from @farrahgray_  #singlemothers #OIMom

Loving this to no end. Been 🥊🥊🥊🥊🥊🥊🥊🥊 for so long to help buffer my daughter from feeling the pangs. Doesn’t always work, but we’re STILL HERE!! Falling but getting back up. GOD knows ALL. HE is a WAY MAKER! Picture is a repost from @farrahgray_ #singlemothers #OIMom

#tbt to my last dose of bisphosphonates - since then I’ve pb’d pretty much all distances I’ve covered, despite only being able to run once a week. Cross training with the @concept2uk has worked for me - long may it continue! #running #crosstraining #ukrunchat #runchat #brittlebones #OI #osteogenesisimperfecta

#tbt to my last dose of bisphosphonates - since then I’ve pb’d pretty much all distances I’ve covered, despite only being able to run once a week. Cross training with the @concept2uk has worked for me - long may it continue! #running #crosstraining #ukrunchat #runchat #brittlebones #OI #osteogenesisimperfecta

Hi furiens! I feely bedder an bedder alld da time! My yeg stell sore but I gud. Wubs yew allds! #love #❤ #chihuahua #twigsforlegs #brittlebones #tinygirl #mommasgirl #profile #cutie #adorable #dog #baby

Hi furiens! I feely bedder an bedder alld da time! My yeg stell sore but I gud. Wubs yew allds! #love #❤ #chihuahua #twigsforlegs #brittlebones #tinygirl #mommasgirl #profile #cutie #adorable #dog #baby

My sleepy #princessBelle watching Princess Sofia in Chinese. We're so glad to be getting this big girl her "bone juice" today! Looking forward to stronger, less painful days ahead!!! .
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#oi #osteogenisisimperfecta #brittlebones #oican #zole #bravegirl #bonejuice #transfusion #TCKs #tck #tcklife #Chinaishome #sofiathefirst #mandarin #languagelearners #expatlife #expat #expatmom

My sleepy #princessBelle watching Princess Sofia in Chinese. We're so glad to be getting this big girl her "bone juice" today! Looking forward to stronger, less painful days ahead!!! . . . #oi #osteogenisisimperfecta #brittlebones #oican #zole #bravegirl #bonejuice #transfusion #TCKs #tck #tcklife #Chinaishome #sofiathefirst #mandarin #languagelearners #expatlife #expat #expatmom

I’m not going to have time for any more walks before Christmas so just wanted to say a huge thank you and Merry Christmas to everyone who’s followed my walks so far, who’s shared and liked my posts, joined me on walks and donated to my JustGiving page. The support has been amazing. I’ve got 29 walks still to do before August and weather permitting, will hopefully get one or two in over the New Year. Thank you again and Merry Christmas 🎄#bbs50walks #brittlebonesociety #osteogenesisimperfecta #brittlebones #oican #rarebutreal #wheelchair #wheelchairwalks #walkswithwheelchairs #wheelchairlife #fundraising #justgiving

I’m not going to have time for any more walks before Christmas so just wanted to say a huge thank you and Merry Christmas to everyone who’s followed my walks so far, who’s shared and liked my posts, joined me on walks and donated to my JustGiving page. The support has been amazing. I’ve got 29 walks still to do before August and weather permitting, will hopefully get one or two in over the New Year. Thank you again and Merry Christmas 🎄#bbs50walks #brittlebonesociety #osteogenesisimperfecta #brittlebones #oican #rarebutreal #wheelchair #wheelchairwalks #walkswithwheelchairs #wheelchairlife #fundraising #justgiving

On Monday I had my third operation on my leg where they removed the old rod, re-broke my fibula and put on an Ilizarov frame. Hopefully this will align my bones and they will finally heal!

I'm doing really well, been up and about on my crutches around the ward, the physio's and doctors are very impressed! And best of all, after only staying for two night, I now get to go home!!! Waheyy 😄😄

On Monday I had my third operation on my leg where they removed the old rod, re-broke my fibula and put on an Ilizarov frame. Hopefully this will align my bones and they will finally heal! I'm doing really well, been up and about on my crutches around the ward, the physio's and doctors are very impressed! And best of all, after only staying for two night, I now get to go home!!! Waheyy 😄😄

My bones hurt so bad. Thank god for layers. I need to stock up on my vitamins. #osteogenesisimperfecta #oipride #BrittleBones

My bones hurt so bad. Thank god for layers. I need to stock up on my vitamins. #osteogenesisimperfecta #oipride #BrittleBones

After she broke both of her arms and had to have surgery, Minnak recently has been diagnosed with "Osteogenesis imperfecta".. it is also known as "brittle bone disease"..which is a very very rare disease even among people..So we want people to be aware of this disease and know that it can be seen in animals too..And also we would like to know if anyone has a cat/pet which has this condition.. #minnak #osteogenesisimperfecta #brittlebones #brittlebonedisease #bonedisease #catinneed #catsinneed #catwithspecialneeds #specialneedscat #specialneedscatsofinstagram #fragile #fragilecat #brittlecat #brittlesmurf #specialcat #uniquecat #geneticanomaly #specialneedspet #specialneedspets #specialneedsanimals #geneticdisorder #geneticdisorders #raredisease #rarediseases #catsofinstagram #cats_of_instagram #catstagram #instacat #catlove #catlover @catloversclub @cats_of_instagram  @happypetclub @cutepetclub @cats._lovers @catsofinstagram @sweetcatclub @meow.kitty.cats  @kittenxlady @pamperedcats

After she broke both of her arms and had to have surgery, Minnak recently has been diagnosed with "Osteogenesis imperfecta".. it is also known as "brittle bone disease"..which is a very very rare disease even among people..So we want people to be aware of this disease and know that it can be seen in animals too..And also we would like to know if anyone has a cat/pet which has this condition.. #minnak #osteogenesisimperfecta #brittlebones #brittlebonedisease #bonedisease #catinneed #catsinneed #catwithspecialneeds #specialneedscat #specialneedscatsofinstagram #fragile #fragilecat #brittlecat #brittlesmurf #specialcat #uniquecat #geneticanomaly #specialneedspet #specialneedspets #specialneedsanimals #geneticdisorder #geneticdisorders #raredisease #rarediseases #catsofinstagram #cats_of_instagram #catstagram #instacat #catlove #catlover @catloversclub @cats_of_instagram @happypetclub @cutepetclub @cats._lovers @catsofinstagram @sweetcatclub @meow.kitty.cats @kittenxlady @pamperedcats

Just messing with my Zulu palette by @juviasplace. Trying to go out of my comfort zone and do more vibrant amazing looks. This is just practice people so don't go all judge Judy on my ass. Lmao. 😂 sorry for shitty quality, my phone sucks lol #zulupalette #juviasplace #love #makeup #makeupjunkie #ilovemakeup #mua #makeupgeek #makeuplover #influencer #makeupaddict #undiscovered_muas #wakeupmakeup #makeupmafia #muaofinstagram #pictureoftheday #makeupoftheday #makeupobsessed #makeupislife #becreative #minimakeupmama #smallbutfiesty #oi #brittlebones #fiercesociety #makeupfanatic

Just messing with my Zulu palette by @juviasplace. Trying to go out of my comfort zone and do more vibrant amazing looks. This is just practice people so don't go all judge Judy on my ass. Lmao. 😂 sorry for shitty quality, my phone sucks lol #zulupalette #juviasplace #love #makeup #makeupjunkie #ilovemakeup #mua #makeupgeek #makeuplover #influencer #makeupaddict #undiscovered_muas #wakeupmakeup #makeupmafia #muaofinstagram #pictureoftheday #makeupoftheday #makeupobsessed #makeupislife #becreative #minimakeupmama #smallbutfiesty #oi #brittlebones #fiercesociety #makeupfanatic

I am thankful to have this little in my life. He’s always there to make me laugh.... & pull my hair out. 🤪 But how can you watch this and not let your heart explode?! 💥 #rykerraps #littleredryker #osteogenesisimperfecta #brittlebones #oi #rykerstrong #nashville #nashvilletn #redhairdontcare #crazyhairdontcare #gingerbean #five

I am thankful to have this little in my life. He’s always there to make me laugh.... & pull my hair out. 🤪 But how can you watch this and not let your heart explode?! 💥 #rykerraps #littleredryker #osteogenesisimperfecta #brittlebones #oi #rykerstrong #nashville #nashvilletn #redhairdontcare #crazyhairdontcare #gingerbean #five

Been having a rough time mentally & physically dealing with this winter — the days all blend together, sense of time feels irregular and the sky turns dark too soon.  I feel burnt out before my day begins, but I know this will pass! ✨🕯✨ #cannabis #cannabiscommunity #🍁 #marijuana #cannabishealth #medicalmarijuana #oi #brittlebones #osteogenesisimperfecta #chronicpain #joint #kush #smoking #disabled #disability #chronicillness #osteoporosis #health #medicalcannabis #pipe #THC #bones #fragilebones #alternativemedicine #wellness #strain #indica #sativa

Been having a rough time mentally & physically dealing with this winter — the days all blend together, sense of time feels irregular and the sky turns dark too soon. I feel burnt out before my day begins, but I know this will pass! ✨🕯✨ #cannabis #cannabiscommunity #🍁 #marijuana #cannabishealth #medicalmarijuana #oi #brittlebones #osteogenesisimperfecta #chronicpain #joint #kush #smoking #disabled #disability #chronicillness #osteoporosis #health #medicalcannabis #pipe #THC #bones #fragilebones #alternativemedicine #wellness #strain #indica #sativa

This little boy, absolutely makes my heart melt!😩 Got dent this earlier, him practising his nativity songs 😍 (he’s saying ‘nibble, nibble, crunch’ at the end btw😂) #nephew #love #brittlebonedisease #ostegenesisimperfecta #oi #brittlebonessociety #brittlebones

This little boy, absolutely makes my heart melt!😩 Got dent this earlier, him practising his nativity songs 😍 (he’s saying ‘nibble, nibble, crunch’ at the end btw😂) #nephew #love #brittlebonedisease #ostegenesisimperfecta #oi #brittlebonessociety #brittlebones

It’s Monday. And because it’s Monday it has to be motivational. So here’s my wisdom for this Monday - enjoy the day for you. Make it your day and don’t let anyone else shit on your Monday that is hopefully filled with lots of unicorns and rainbows.

It’s Monday. And because it’s Monday it has to be motivational. So here’s my wisdom for this Monday - enjoy the day for you. Make it your day and don’t let anyone else shit on your Monday that is hopefully filled with lots of unicorns and rainbows.

Mr. Bones had an accident and needed emergency surgery!!! #mrbones #brittlebones #poorguy

Mr. Bones had an accident and needed emergency surgery!!! #mrbones #brittlebones #poorguy

If you are in the boxing game coaching or fighting you better know what this is! 😳. Get your hands paraffin waxed and a hand massage!! 👍👍 trust and thank me later .
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#parrafinwax #parrafin #handmassage #saveyourhands #sorehands #protectyourpaws #boxing #brittlebones #handshurt #mittskill #sweetsciencefitnessatlanta #sweetscienceboxing #boxing

If you are in the boxing game coaching or fighting you better know what this is! 😳. Get your hands paraffin waxed and a hand massage!! 👍👍 trust and thank me later . . . #parrafinwax #parrafin #handmassage #saveyourhands #sorehands #protectyourpaws #boxing #brittlebones #handshurt #mittskill #sweetsciencefitnessatlanta #sweetscienceboxing #boxing

I love spending time with my sweet girl. She really is my best friend. Having a daughter really is a dream come true. I couldn't have asked for a better child. #paigeerika, #sweetgirl, #iloveher, #shesperfect, #mydaughter, #theygrowsofast, #alwaysbemybaby, #mommysgirl, #fouryearsold, #motherdaughter, #motherdaughterlove, #mommyandme, #momlife, #onlychildforever, #oneanddone, #osteogenesisimperfecta, #type5OI, #brittlebones, #wheelchairuser, #wheelchairusingmom

I love spending time with my sweet girl. She really is my best friend. Having a daughter really is a dream come true. I couldn't have asked for a better child. #paigeerika, #sweetgirl, #iloveher, #shesperfect, #mydaughter, #theygrowsofast, #alwaysbemybaby, #mommysgirl, #fouryearsold, #motherdaughter, #motherdaughterlove, #mommyandme, #momlife, #onlychildforever, #oneanddone, #osteogenesisimperfecta, #type5OI, #brittlebones, #wheelchairuser, #wheelchairusingmom

Online DIABETIC EDUCATOR9 CME Credit hours accredited by DHA
https://www.bactmed.com/courses/diabetic-educator/
Whatsapp:00971555593211
#bactmed #heart #sleepy #health #beauty #hormones #brittlebones #heartdisease #hypertension #diabetic #obesity #sugar #regulator #grain #medication #needle

Online DIABETIC EDUCATOR9 CME Credit hours accredited by DHA https://www.bactmed.com/courses/diabetic-educator/ Whatsapp:00971555593211 #bactmed #heart #sleepy #health #beauty #hormones #brittlebones #heartdisease #hypertension #diabetic #obesity #sugar #regulator #grain #medication #needle

My friend and fellow O.I.er, @andremouraria reppin’ for the #disableyourdisability movement! Thanks Andre!!! #breakingbarriersnotbones #osteogenesisimperfecta #brittlebones #fuoi #book #goodreads

My friend and fellow O.I.er, @andremouraria reppin’ for the #disableyourdisability movement! Thanks Andre!!! #breakingbarriersnotbones #osteogenesisimperfecta #brittlebones #fuoi #book #goodreads

2 years of in the trenches work doing the hard shit over and over. #flashbackfriday

2 years of in the trenches work doing the hard shit over and over. #flashbackfriday

Honored to watch @biz_gray captain the @navyathletics Women’s Swim team to their 29th straight victory over Army. #leadfromthefront #goNavy #brittlebones #goBizgo

Honored to watch @biz_gray captain the @navyathletics Women’s Swim team to their 29th straight victory over Army. #leadfromthefront #goNavy #brittlebones #goBizgo

"This is my Miracle Sophia Grace! We found out when I was 26 weeks pregnant that Sophia was going to be born with osteogenesis Imperfecta. From that day on we had countless specialists appointments, countless ultrasounds, and many unanswered questions. We were told to prepare for the worst. They told us Sophia wouldn’t be able to breathe or eat on her own, she would never walk and she would break countless bones every year. We had faith in God and all the professionals around us. We knew our little girl would be just fine. Skip ahead to 37 weeks my water broke and we headed to the hospital. I was scared for my daughter. I️ was afraid all those doctors would be right. Then at 11:49pm on April 5, 2016 Sophia Grace came out screaming!! The most beautiful sound I️ ever heard! From that moment on I knew all the doctors were wrong about everything they told me she would never do! She was breathing on her own, she was eating on her own! She was perfect. We left that hospital 3 days later with a very fragile child! She broke many times in the first few months of her life! We decided to move to Delaware so she could be seen by some of the best specialists who deal with her condition. Fast forward to now and Sophia is thriving!! She is currently 19 months old and like any other kid, granted she does break easy. When Sophia doesn’t have a fracture she is walking independently and climbing steps! She is a warrior. We have been through many surgeries, many hospital stays and many broken bones but Sophia is by far the most beautiful girl you will ever meet. She has a personality that will make anyone laugh and everywhere we go people smile and comment on how beautiful she is! She is the smartest girl I️ know and the bravest. She handles her medication like a champ. I️ want you all to know that no matter what the doctors tell you just have faith! If we would have listened to those doctors in Colorado we wouldn’t be where we are today! Have faith in your family and in God that everything will be okay and everything will be! We have been given the best gift in life and I’d go through all this again just to have my sweet Sophia!" ❤️✨ @fragilesophia #enableawareness

"This is my Miracle Sophia Grace! We found out when I was 26 weeks pregnant that Sophia was going to be born with osteogenesis Imperfecta. From that day on we had countless specialists appointments, countless ultrasounds, and many unanswered questions. We were told to prepare for the worst. They told us Sophia wouldn’t be able to breathe or eat on her own, she would never walk and she would break countless bones every year. We had faith in God and all the professionals around us. We knew our little girl would be just fine. Skip ahead to 37 weeks my water broke and we headed to the hospital. I was scared for my daughter. I️ was afraid all those doctors would be right. Then at 11:49pm on April 5, 2016 Sophia Grace came out screaming!! The most beautiful sound I️ ever heard! From that moment on I knew all the doctors were wrong about everything they told me she would never do! She was breathing on her own, she was eating on her own! She was perfect. We left that hospital 3 days later with a very fragile child! She broke many times in the first few months of her life! We decided to move to Delaware so she could be seen by some of the best specialists who deal with her condition. Fast forward to now and Sophia is thriving!! She is currently 19 months old and like any other kid, granted she does break easy. When Sophia doesn’t have a fracture she is walking independently and climbing steps! She is a warrior. We have been through many surgeries, many hospital stays and many broken bones but Sophia is by far the most beautiful girl you will ever meet. She has a personality that will make anyone laugh and everywhere we go people smile and comment on how beautiful she is! She is the smartest girl I️ know and the bravest. She handles her medication like a champ. I️ want you all to know that no matter what the doctors tell you just have faith! If we would have listened to those doctors in Colorado we wouldn’t be where we are today! Have faith in your family and in God that everything will be okay and everything will be! We have been given the best gift in life and I’d go through all this again just to have my sweet Sophia!" ❤️✨ @fragilesophia #enableawareness

It was Taco Tuesday 🌮
#osteogenesisimperfecta  #tacotuesday #cutekid #kids #frobabies #brittlebones #cutebabies #babyboy #rosascafe
👥 ⤵ Double tap & tag your friend Love it
Via: @thomasthee3rd
#kidsstyle

It was Taco Tuesday 🌮 #osteogenesisimperfecta #tacotuesday #cutekid #kids #frobabies #brittlebones #cutebabies #babyboy #rosascafe 👥 ⤵ Double tap & tag your friend Love it Via: @thomasthee3rd #kidsstyle

Med brist på kjeven er det grøt til lunsj på jobb. 6 dager igjen med bløt mat. #brittlebones

Med brist på kjeven er det grøt til lunsj på jobb. 6 dager igjen med bløt mat. #brittlebones

If you treat every day as a novice, it leaves you always seeking mastery.

If you treat every day as a novice, it leaves you always seeking mastery.

Online DIABETIC EDUCATOR9 CME Credit hours accredited by DHA
https://www.bactmed.com/courses/diabetic-educator/
Whatsapp:00971555593211
#bactmed #heart #sleepy #health #beauty #hormones #brittlebones #heartdisease #hypertension #diabetic #obesity #sugar #regulator #grain #medication #needle

Online DIABETIC EDUCATOR9 CME Credit hours accredited by DHA https://www.bactmed.com/courses/diabetic-educator/ Whatsapp:00971555593211 #bactmed #heart #sleepy #health #beauty #hormones #brittlebones #heartdisease #hypertension #diabetic #obesity #sugar #regulator #grain #medication #needle

#transformationtuesday -  12 years of #fuoi and never letting myself down.

#transformationtuesday - 12 years of #fuoi and never letting myself down.

🌿✨🌿✨🌿✨🌿 ✨At the end of the month I’ll be undergoing an ulnar nerve anterior transposition in hopes of regaining sensation in my hand again.  A couple years ago  I woke up with my hand numb and it just stayed that way. Part of Bruck Syndrome encompasses locked joints and years of a locked elbow and leaning on it pinched the ulnar nerve — which runs from your neck, down into your arm and into your hand. 
I’ve put the surgery on the back burner for awhile since it wasn’t too uncomfortable at first, but over time it’s become unmanageable. I’m hoping the surgery undoes the damage! 
My partner very wisely suggested I roll now for easy access after surgery and it was a very good idea! Took me a lot longer to roll them than I thought! Hoping this will make weaning off of painkillers easier and quicker. ✨🌿🌸 Might have to test one out...you know, quality inspection. 🤗🚬🌿#cannabiscommunity #weed #marijuana #cannabishealth #medicalmarijuana #oi #brittlebones #osteogenesisimperfecta #chronicpain #joint #kush #smoking #disabled #disability #chronicillness #osteoporosis #health #medicalcannabis #pipe #THC #bones #fragilebones #alternativemedicine #wellness #strain #indica #sativa

🌿✨🌿✨🌿✨🌿 ✨At the end of the month I’ll be undergoing an ulnar nerve anterior transposition in hopes of regaining sensation in my hand again. A couple years ago I woke up with my hand numb and it just stayed that way. Part of Bruck Syndrome encompasses locked joints and years of a locked elbow and leaning on it pinched the ulnar nerve — which runs from your neck, down into your arm and into your hand. I’ve put the surgery on the back burner for awhile since it wasn’t too uncomfortable at first, but over time it’s become unmanageable. I’m hoping the surgery undoes the damage! My partner very wisely suggested I roll now for easy access after surgery and it was a very good idea! Took me a lot longer to roll them than I thought! Hoping this will make weaning off of painkillers easier and quicker. ✨🌿🌸 Might have to test one out...you know, quality inspection. 🤗🚬🌿#cannabiscommunity #weed #marijuana #cannabishealth #medicalmarijuana #oi #brittlebones #osteogenesisimperfecta #chronicpain #joint #kush #smoking #disabled #disability #chronicillness #osteoporosis #health #medicalcannabis #pipe #THC #bones #fragilebones #alternativemedicine #wellness #strain #indica #sativa

Hitting the road for Wichita with this little lady and Cate! Her follow up with our wonderful bone doc is tomorrow! We have learned by now to never go into these appointments with any kind of expectation… So just praying for the best and invite you to join us in that!❤️🙏🏻☺️

Hitting the road for Wichita with this little lady and Cate! Her follow up with our wonderful bone doc is tomorrow! We have learned by now to never go into these appointments with any kind of expectation… So just praying for the best and invite you to join us in that!❤️🙏🏻☺️

#OIWarrior is back in stock 🎉Do you know of a non-profit for #osteogenesisimperfecta? I have several tees that I would like to donate. If you know of an organization or someone who works for one, will you please tag them here?

#OIWarrior is back in stock 🎉Do you know of a non-profit for #osteogenesisimperfecta? I have several tees that I would like to donate. If you know of an organization or someone who works for one, will you please tag them here?

Got one of my pairs of prebaby jeggings on tonight for the first time postpartum!! Woooop wooooop!!! 🙌🏻❤️I have TWO pairs of pants that I can wear now!!! Lol #yogapantsERRYDAY😂 #5monthspostpartum

Got one of my pairs of prebaby jeggings on tonight for the first time postpartum!! Woooop wooooop!!! 🙌🏻❤️I have TWO pairs of pants that I can wear now!!! Lol #yogapantsERRYDAY😂 #5monthspostpartum

My 50th birthday wish.  All for my Hannah. ❤️ Feel free to repost/share.  I keep it light here, but if you want to learn more about Hannah (living with OI), please visit the link above - also found in bio. GOD bless. #brittlebones #osteogenesisimperfecta #OI #50thbirthday #finechinahannah #my1stpersonalvideochallenge

My 50th birthday wish. All for my Hannah. ❤️ Feel free to repost/share. I keep it light here, but if you want to learn more about Hannah (living with OI), please visit the link above - also found in bio. GOD bless. #brittlebones #osteogenesisimperfecta #OI #50thbirthday #finechinahannah #my1stpersonalvideochallenge

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